Fifty Percent: short film on Huntington's – is it better to know your future or live in the moment?

Guardian Australia
Guardian Australia
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Published 2021-08-30
With a 50% chance of inheriting a fatal disease, is it better to know your future or live in the moment?

Lillian Hanly has a 50/50 chance of inheriting Huntington’s, a neurodegenerative disease. With a number of her family testing positive for the gene, and her mother already affected by it, she must come to a decision: Get tested now or continue to live on, in the unknown.

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Fifty Percent is part of the Loading Docs 2021 collection. The films can be viewed online via loadingdocs.net/

I have a 50/50 chance of inheriting Huntington’s disease – should I take a test to find out? | Lillian Hanly ► www.theguardian.com/world/commentisfree/2021/aug/3…

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All Comments (7)
  • @huntingtonsvictoria3391
    Big thank you to Lillian and her family for sharing their personal story in relation to the challenges of deciding whether to get tested or not. I know the Huntington’s community will appreciate this realistic representation of the impacts of Huntington’s disease on a family
  • @tudormiller887
    I'd want to know. Especially if I was having a family, so they didn't inherit this disease.
  • @mauramcferran2612
    As long as not having children. It ok if you choose not too get tested .Otherwise be Cruel to pass on to a child in my opinion.