Choosing a Wheelchair for POTS, Ehlers-Danlos and Non-Epileptic Seizures

Disability with Soleil
Disability with Soleil
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Published 2021-12-21
Join me, Soleil, on my journey empowering those with disabilities and chronic illness. I share details of my daily struggles and triumphs, medical symptoms, mental health, chronic pain, medical treatments, doing my best and staying positive
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I’m passionate about bringing awareness to and reducing stigma towards living with disabilities, experiencing ‘invisible’ chronic illness, mental illnesses, ambulatory wheelchair use, nurturing healthy relationships and being confident and sexy in our own skin. I share my experience to give visibility and education towards these topics.
If you have a question, ask me in the comments!

My medical conditions include: Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), Non-Epileptic Seizures (NES), Fibromyalgia, Chronic Fatigue Syndrome (CFS), Degenerative Disc Disease (DDD), Gastroparesis, Raynaud's Disease, Post Traumatic Stress Disorder (PTSD), Borderline Personality Disorder (BPD), Generalized Anxiety (GAD), Sensory Integration Disorder, Depression, Hashimoto's Thyroiditis, and Endometriosis.
I would love to hear your experiences with self-love, empowerment, accessibility, and nontraditional living.
Let me know your perspective in the comments!

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I’d love to connect with you & create a community of like-minded and non-traditional individuals.
Comment below and connect with me on Instagram: www.instagram.com/justsoleil_/
and on my Website justsoleil.blogspot.com/p/links.html

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All Comments (7)
  • @sugarhugger8516
    I have eds and I'm a quadriplegic and ms. I can definitely recommend the quantum edge 3 stretto with eye level. It has a much smaller wheel base. I also have the spirit autofold. Both are really good chairs
  • @monicalee2462
    Thank you for explaning the diffrence between the chairs and what they are able to do
  • @joshdaw8578
    So I have EDS and POTS as well and am trying to find somewhere to get fitted for a wheelchair in my area, this video was super helpful in giving me an idea of what I want to get. But I noticed you wear ring splints, and I do as well, has that interfered with using a wheelchair for you or damaged the splints at all? I use oval 8's right now but am waiting on getting some metal ones with insurance and I would hate to spend money on them and they get messed up. Thanks!
  • @theyggdrasilarchives
    do you have any tips for those looking into getting a wheelchair for EDS and POTS?