Stage 4 Endometriosis Diagnosis at Age 34

@victoriakatofficial 7 days ago

I’m currently suffering from the same type of symptoms. I have been trying to get the laparoscopy exam and it’s like pulling teeth. It’s making me angry hearing how these doctors didn’t take you seriously. Like as if you would purposely choose to go through all of these hassles to be “dramatic”. I am so sorry that they failed you like this.

@akalessi 5 days ago

Thank you for sharing your story, I have and still do deal with very similar issues trying to navigate it myself so your story makes me feel like I’m not crazy and these things are true and happening to more people than just me. So thank you 💖 and take care ! Ps your fur babies are adorable! 😍

@vilma9774 7 days ago

I live in Finland and when i was about 20 gynecologist said i have probably superficial endometriosis and i should use pills. Years after i got problems in my digestion and blood coming wrong places. I also got period pain without periods. Problems with urinating like urinating 5 times per night.I went to doctors and gynecologist who said everything is fine. It is probably irritated bowel. Diarrhea was sometimes constant. I went to gynecologist again seven years after that ans she said my uterus could be stucked to bowel and there is probably lot of adhensions. I feel health care system betrayed me. I was also many times in emergency because stabbin pain(knife on my sides and stomach) but usually doctors yelled at me that there is nothing wrong with me! One doctor said that it is probably just period pain even though i just have them. We pay taxes here a lot and doctors dont even seem to know this disease. I also look very healthy and young outside. I suspect this is also one reason it was hard to get help. This is not mens disease so doctors or researchers are not interested about this. Also deep endometriosis is quite rare i think.

@pinkwheels1313 14 days ago

You poor thing!!! Thank you for sharing your story and being so open. I'm so sorry for all that you've experienced. It's so traumatising to be treated this way by the health system. I can relate to some stuff you've shared and know how isolating it can be. Although the level of pain/sickness you've experienced sounds especially difficult and I really feel for you. I wish you well in your journey 🙏

@SerenaBee 3 months ago

oh Laura, I'm so sorry to hear you've been dealing and going through all of this :( i was crying along with you while watching this. I can relate to you thou, not the same health issues but I've been in pain since 18 when I got diagnosed with Crohn's (IBD) and I have other mystery body pains now that all come back normal in scans and MRIs yet I'm in chronic pain daily :( I can relate when you say your quality of life makes it hard for you to become the parent you envision, I also have these fears and worries but yet I hope one day to become a mom, as well. I'm happy to hear you managed to get your trauma and anxiety under control!! I'm currently in trauma therapy and have tried emdr as well but not much. Medical trauma is a real thing and these doctors really can effect us negatively when we just want answers yet they pile on top of the trauma we already have. I know the numbness from going from appt to appt saying the same story over and over again and doctor's not taking you seriously, it's a real mind fuck! Anyway, there's probably so much more we could commiserate over and talk for hours but I'm glad you finally got the answers you've been searching for, a DR who listened, and hopefully your quality of life can finally start to turn a new leaf <3 thanks for sharing your story.

@amaliamaria4147 1 month ago

Laura, I've cried listening to you! You need to look for an OB specialist that will be able to have in the operating room other specialists that can remove all the scar tissues. Trust me, you'll be able to be a mother one way or another, but it's important that your organs are ok, your digestive, urinary systems are ok and that your life in not in danger in your 40s, 50s. You have a whole life to be a mother and a wonderful wife! Find support in local communities, facebook groups, read other women's stories and you'll find the support you need. I am getting ready myself to be a parent, but I know it'll probably take a surgery to get things right, so please look either in US or EU for specialists to treat this. France, Italy, Romania for example. You got this! Both you and your husband got this. You'll win this and everything will be OK!

@MauraNLydon 14 days ago

Thank you for sharing your story, there was so much in it that I could relate to. I'm so glad you have your diagnosis now and are learning more about how this disease works. I really hope you continue to get better and heal from all the pain this has caused ❤