Cancer Survivor Story: How I Got Diagnosed & Made Treatment Decisions | The Patient Story
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Published 2021-05-16
Nina's full written story will be up at thepatientstory.com/cancers/non-hodgkin-lymphoma soon!
VIDEO 1 (This video): How I Got Diagnosed & Treatment Decisions
VIDEO 2: Going Through Chemotherapy, Side Effects & Hair Loss → • Cancer Survivor Story: Getting Throug...
VIDEO 3: Navigating Life with Cancer (Quality of Life Topics) → • Cancer Survivor Story: How I Deal wit...
VIDEO TOPICS BY TIME CODE:
(3:38) How I figured out something was wrong
(5:20) First time going to get medical care (during COVID!)
(7:00) Dealing with the wait for answers
(8:24) Describing the first biopsy
(11:00) Getting "the call"
(13:45) Processing the diagnosis
(14:27) How I broke the news to my loved ones
(17:00) The bone marrow biopsy (getting poked 4 times!)
(19:28) Guidance on the bone marrow biopsy
All Comments (21)
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What a dad! Everyone should have a dad like that.
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I'm so happy that your treatment was successful.
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every single story i hear about cancer, especially in women, the doctors refuse to listen
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Hows she doing? Your such a good interviewer.
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Thank you for sharing. Please share links of the other sessions in the description as they are very hard to find. Thanks
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Her father is a good one.. Thank goodness for his advocacy!! A year or two could've gone by with medical professionals prescribing analgesics, change of diet,, more physical therapy,, etc or even psychological counseling & telling her there was nothing the matter, which would've been very daunting and time-wasting
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Great interview! I was just diagnosed with aggressive b-cell Non-Hodgkin's lymphoma. Thank you for sharing your story! I'm hope your doing well!
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Thku for sharing your story.
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Same thing happened to me ... went to the er twice and they said everything was fine when I had severe back pain , shortness of breath, nausea for 3 months, dizziness and extreme fatigue... this started on June of 2020... and after going with my primary doctor 4 almost 5 months thinking it was vitamin D deficiency I got diagnosed with diffused large B cell lymphoma stage 4 on January... going through chemo right now RCHOP... I have 2 more to go:(
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Im glad I saw your video. My husband is scheduled for a biopsy. We’ve been told it could be lymphoma but won’t know 100% until that’s done. I am broken, scared but I have hope and faith 😔 I am glad you are doing well
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Nina, thank you for sharing. I feel sure that you will have a good outcome. Please tell your father that Seattle Genetics and Adcetris are the greatest. My father was diagnosed with Hodgkin’s lymphoma at age 86. His oncologist did not think that he could tolerate chemotherapy, and was able to get Medicare to approve going straight to the second line targeted therapy, Adcetris. My father went into total remission from wide-spread disease, with no side effects.
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I was diagnosed with aggressive MANTLE cell Lymphoma blastoid variant stage 4 in May 2022 and underwent a R-Bendamustine chemotherapy over the last 6 months as I am 78. Halfway through more than 50% reduction and I am waiting for Pet scan to see whether I am in remission. I am having an injection of maintenance Rituximab every 2 months for 2 years. I didn’t lose my hair, just thinner, and felt tired, otherwise no symptoms so am hoping for a good outcome. Completely unexpected diagnosis as had several chest infections over 6 months, a bit tired, that’s all. M Luckily I had many tests and biopsy’s in 6 weeks before my oncologist told me his diagnosis. it’s quite rare and mainly affects men.
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Great interview.
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I love these stories, if only you can post photos of how patients looked like just before their diagnosis to see tjeir physical shape it can raise awareness more
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She's just lucky her dad happened to work in oncology and pushed for it. Otherwise it probably would not have been caught until it was too late. Incredible story
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Lymphoma is so diverse for doctors to believe it's what it is
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3:29 first syptoms
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U have a great dad.
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Do you focus on mainly blood cancers?
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Wow ....Her Dad.. ,😍