Cancer Survivor Story: How I Got Diagnosed & Made Treatment Decisions | The Patient Story

Published 2021-05-16
Nina shares her entire in-depth story of living with stage 4 diffuse large b-cell lymphoma, the most common type of non-Hodgkin lymphoma, bringing us from her first symptoms, treatment decision making, chemotherapy and side effects, hair loss, and how she used social media to help inspire others.

Nina's full written story will be up at thepatientstory.com/cancers/non-hodgkin-lymphoma soon!

VIDEO 1 (This video): How I Got Diagnosed & Treatment Decisions
VIDEO 2: Going Through Chemotherapy, Side Effects & Hair Loss →    • Cancer Survivor Story: Getting Throug...  
VIDEO 3: Navigating Life with Cancer (Quality of Life Topics) →    • Cancer Survivor Story: How I Deal wit...  

VIDEO TOPICS BY TIME CODE:
(3:38) How I figured out something was wrong
(5:20) First time going to get medical care (during COVID!)
(7:00) Dealing with the wait for answers
(8:24) Describing the first biopsy
(11:00) Getting "the call"
(13:45) Processing the diagnosis
(14:27) How I broke the news to my loved ones
(17:00) The bone marrow biopsy (getting poked 4 times!)
(19:28) Guidance on the bone marrow biopsy

All Comments (21)
  • @roflin101
    What a dad! Everyone should have a dad like that.
  • @alohatvj
    I'm so happy that your treatment was successful.
  • every single story i hear about cancer, especially in women, the doctors refuse to listen
  • @gingin1050
    Hows she doing? Your such a good interviewer.
  • @wendyreyes1466
    Thank you for sharing. Please share links of the other sessions in the description as they are very hard to find. Thanks
  • @pattimorey7766
    Her father is a good one.. Thank goodness for his advocacy!! A year or two could've gone by with medical professionals prescribing analgesics, change of diet,, more physical therapy,, etc or even psychological counseling & telling her there was nothing the matter, which would've been very daunting and time-wasting
  • @beauhopkins2085
    Great interview! I was just diagnosed with aggressive b-cell Non-Hodgkin's lymphoma. Thank you for sharing your story! I'm hope your doing well!
  • Same thing happened to me ... went to the er twice and they said everything was fine when I had severe back pain , shortness of breath, nausea for 3 months, dizziness and extreme fatigue... this started on June of 2020... and after going with my primary doctor 4 almost 5 months thinking it was vitamin D deficiency I got diagnosed with diffused large B cell lymphoma stage 4 on January... going through chemo right now RCHOP... I have 2 more to go:(
  • @arianna720
    Im glad I saw your video. My husband is scheduled for a biopsy. We’ve been told it could be lymphoma but won’t know 100% until that’s done. I am broken, scared but I have hope and faith 😔 I am glad you are doing well
  • @anglophils645
    Nina, thank you for sharing. I feel sure that you will have a good outcome. Please tell your father that Seattle Genetics and Adcetris are the greatest. My father was diagnosed with Hodgkin’s lymphoma at age 86. His oncologist did not think that he could tolerate chemotherapy, and was able to get Medicare to approve going straight to the second line targeted therapy, Adcetris. My father went into total remission from wide-spread disease, with no side effects.
  • I was diagnosed with aggressive MANTLE cell Lymphoma blastoid variant stage 4 in May 2022 and underwent a R-Bendamustine chemotherapy over the last 6 months as I am 78. Halfway through more than 50% reduction and I am waiting for Pet scan to see whether I am in remission. I am having an injection of maintenance Rituximab every 2 months for 2 years. I didn’t lose my hair, just thinner, and felt tired, otherwise no symptoms so am hoping for a good outcome. Completely unexpected diagnosis as had several chest infections over 6 months, a bit tired, that’s all. M Luckily I had many tests and biopsy’s in 6 weeks before my oncologist told me his diagnosis. it’s quite rare and mainly affects men.
  • @Bambotb
    I love these stories, if only you can post photos of how patients looked like just before their diagnosis to see tjeir physical shape it can raise awareness more
  • She's just lucky her dad happened to work in oncology and pushed for it. Otherwise it probably would not have been caught until it was too late. Incredible story
  • @joyrees7966
    Lymphoma is so diverse for doctors to believe it's what it is