My Blindness Story - Albinism and Vision Loss

Published 2021-02-13
This one's far more personal than most of my videos. I didn't plan what I wanted to say, but I think that's what makes it more honest and more truly represents the experiences and emotions I have had working through my vision loss journey. I've worked my whole life to feel included. I've tried everything to be "normal"... But that's never been my journey. From bullying to discrimination I've seen it all. Blindness has been a winding road of ups and downs, with many wrong turns along the way. But I'm proud of who I am today. I would love to hear about your experiences with vision loss or disability. I know we likely share many details, but the story remains uniquely our own.

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Thumbnail Description: Tamara sits in her filming space with a slightly sad expression on her face. Her hands are clasped together. She is wearing a navy blue off the shoulder jumpsuit. On the left, over a semi-transparent blue background, white text reads My Blindness Story Albinism and Vision Los.

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Filmed on Lumix G7

All Comments (21)
  • I was born with a rare form of osteoporosis that effects my vision. I am not fully blind but I am legally blind and I can relate to so many things that you mentioned. Until I have gotten connected to other people with visual impairments I really have not had much of a social interaction with people my age. For a long time I new that I am different than other people however I didn’t acknowledge it so it never bothered me. Now that I realize what it is like to have a disability I realize that it can lead to so much depression and discrimination. Teachers and staff brought visual impairments to students the same way they did with you. This really angers me now because they pushed that I was dangerous to be around because I have OI and the wrong way of describing a disability and now it is up to me to re-educate people on the truth. I don’t mind doing that but I hate when people spread misinformation and make it harder to give an accurate answer. So I’m glad you are getting this information out to people. I truly appreciate you taking responsibility for something you don’t have to do. You’re channel has brought me entertainment and still gets the message out to people. You going through every comment you find truly means a lot. I hope you continue to have success in life and things with medical help improves for you. You have got me thinking about creating a channel to do the same thing for people I want to educate people about disabilities for a better future for others
  • @MaxPlayne87
    I can't even begin to imagine how strong you are. I suffered blindness temporarily and I have huge respect for all blind people. They are the strongest people I can think of.
  • wow, you are remarkable. I have never enjoyed a YouTube from a blind person as much as I have enjoyed yours. I came to this vision impairment late in life so I did not go through the things that you have, but I can appreciate it and I’d love your, joyful life. Gloria Culver.
  • @turbinexman
    You should be a counselor for people who have conditions, similar to yous, as your videos are so informing!! "Big Hugs" to you, Tamara!!
  • @ljbertini713
    I have no words. Thank you so much for sharing such this. As a sighted person, this is so eye-opening and educational for me. I'm so, so sorry you've had to deal with so much. It breaks my heart into a thousand pieces and makes me sick to hear how people have treated you. But I'm so glad you were able to take something away from each situation and can be (and should be) so very proud of all you've fought for and proud of who you are. You are such an inspiration. Looking forward to more videos. <3
  • @AJ-lz3lr
    The way you described your grade 1 experience of being publicly shown that your different.. breaks my heart it happened that way.
  • @neolithic3
    You have an incredible strength. Your mom would be so deeply proud of the woman you have become. I can't believe this channel does not have more subscribers - it's such a great resource. I'm sighted but I am learning so much about the blind community and resources. Thank you for all the information that you provide.
  • @quekse
    Thank you so much for sharing your story! I am a 47-year-old with low vision and I have been dealing with glaucoma all my life and corbea disease of late . I just been feeling really depressed with my gradual vision loss, and it's so hard to coelpe mentally emotionally and physically. This video really gjves me a lot of perspective of how you can manage with your vision loss with a strong mindset. I thank you so much taking courage to produce this video and it made a big inoact
  • @tltate
    I am proud of you too. I experienced bullying in my early years and understand a little of what you went through. I don't know how anyone who knew you could treat you with anything but love and respect. You are gorgeous inside and out. Take care.
  • @poodleeyes4731
    I really appreciated this video and could certainly empathize with it. Thank you so much for sharing. I think blindness brings about so much loneliness and it is so nice to have others to understand what a lot of us blind students go through. I've never thought about it before but maybe I'll make a video sharing my blindness story in the future too. Thanks a lot for the Video.
  • @Hunteress14
    I’m so sorry you’ve had to go through that. I have been homeschooled, but being called names because I was unique has always been a fear of mine. I’m not legally blind but I can not read things that are far away from me. I have to hold books about 1-3 inches from my face.
  • @elcoyote9410
    Low vision person here. You have a kind voice. Thank you
  • @alst1
    Hi, Tamara, Thanks for sharing your story. It does anger me to me learn how dismissive those that could have been instrumental in your early years as you struggled, did so callously cast you off & treat you poorly. I guess they were the ones that were were truly "blind" in capturing your worth human value, as a student or peer. I wish that they could "see you now," and how you have blossomed into the self-sufficient, capable & resilient person, despite the negativity at their hands. God bless you!
  • @violetbell4053
    I have a learning disability I was born with, though you would’t think so looking at me. I can fully understand the bulling and hate. I also lost friends. I sufferd from deprssion and anxity. I hated myself and everything that made me diffiernt and evryone (yes teachers too) I could’nt be me. I would never be able to do anything”normal” kids/teens do. Now age 19 I proved them all wrong and finally enjoy being who I am.
  • @violetbell4053
    Thank you for this. I’m sorry you where treated so horrbly
  • @Lainegggg
    Oh my God I have albinism as well and your story is so similar to mine where are my vision started feeling and Kids were incredibly mean to me I’m so glad somebody gets what I’m going through
  • Hello Tamara. I am really proud of you. You have a really positive attitude. I can understand what you must have gone through. Best Regards
  • @jacekpogoda9503
    Yes you are different: exeptionaly smart, creative, beautiful and kind. I really like it that way <3
  • @chairde
    Here in New Jersey our special education resources would provide books with large print for her. An Individual Education Plan would be provided for her.