My Mobility Aids as an Ambulatory Wheelchair User

43,498
0
Published 2021-08-25
In this video, I’m talking all things mobility aids. I’m sharing how I use them and why I need them in my day-to-day life. I’m an ambulatory wheelchair user, which means I can use my legs. But I’m very limited, which is why I use a wheelchair and other mobility aids. My hope is to normalise the use of mobility devises and break the stigma of what “disability looks like.” There isn’t a one size fits all! Everyone is different and not all disabilities are visible.
Thanks for watching!
Xxx


My Instagram: instagram.com/stelasulzdorf?utm_medium=copy_link


#EDS
#EhlersDanlos
#HypermobileEDS
#EhlersDanlosSyndrome
#BabeWithAMobilityAid
#MobilityAids
#HypermobileEhlersDanlosSyndrome
#ChronicIllness
#invisibleillness
#lupus
#AutoimmuneDisease
#healing
#disability
#dysautonomia
#HealthJourney
#LymeWarrior
#LupusWarrior
#Fainting
#Seizures

All Comments (21)
  • @stelasulzdorf
    Come on a tour around my house, as I show you my mobility aids and how I use them. I’m what’s known as an ambulatory wheelchair user, which means I can use my legs. But I’m very limited, which is why I use a wheelchair and other mobility aids. I’m here to break the stigma of what disability looks like. There isn’t a one size fits all and we’re all very different. Thanks for watching! Xxx
  • @jlastre
    I was just diagnosed with lupus in October. Sometimes the pain is unbearable. Thanks for the video.
  • @cereal4768
    I have a hard time using my smart crutches without pain- I appreciate seeing you use them!
  • Thank you for this video, it was so helpful. I have settled into using a electric wheelchair that my daughter purchased for me to go on a Mediterranean cruise and airplane. I can walk around short distances but nothing else without having much pain. I refused to get a mobility scooter because they are too heavy and cumbersome. So I have only been walking wherever necessary. People are not very nice when they see you walk and ride in a wheelchair or use a scooter. I Didn’t realize I have settled into just not going anywhere other than where I really had to go. Just the thought of having this wheelchair that’s electric light weight has opened up the possibility of going to the park and doing more than just sitting in my car. I think you know what I mean. Thank God you can get up and move around some and I hope I remain somewhat Mobil also. But thank you very much. Very informative.
  • @KatRosUrb
    Hi Stela💫💖Just coming here to let you know that I am enjoying your videos so so much,watching you describing your life make us feel a lot closer and familiar to you!!Who would have thought that there are still not accessible roads and station circa 2021...It is horrible!!Hope you are having a great day, my sweet friend,sending hugs🤗💖💫
  • @hanzkilian1806
    Hello, thanks for the video. I suffer from Adhesive Arachnoiditis and now after 7 spinal ops I use a wheelchair. LIKE YOU I can walk with pain. I too was finding it difficult to justify my chair. Thankfully here in Australia we have a good medical system (NDIA) With this system the Gov supplies all my needs. Thanks for this video - it is encouraging - thank you.
  • Thank you for your videos! I just watched your Neo walk video. I have severe rheumatoid arthritis and my mobility has went downhill significantly. I have a walking stick, normal crutches and crutches that are shaped to my hands and also a wheelchair. I also have splints and supports for nearly every joint in my body . because my health has gone downhill quite dramatically. I have not had long to get used to the idea of depending on mobility aids. I also have the same problem where I am worried about what people think. I have had people tell me it’s embarrassing to use a wheelchair…. But I really do need to use it as I fall over and cannot get out of the house. your video has made me feel like I am not alone. ❤️
  • Great insights into the use of mobility aids and the frequency of their use. Well done hunxx
  • Love this Stela! You are so inspiring and I love how you share all this knowledge and awareness ❤️❤️❤️
  • Thanks for the video! I have EDS to and a inflammatory rheumatological disease, so I was in hospital cause of severe headaches, hyposodiumemia and an inflammatory flare. I could not walk more than 5 meters, so I asked for a wheelchair. Felt guilty about it because I didnt "really really need " it. Even doc thought I was faking, which made me feel more guilty. My best friend when she was still alive had quadriplegia and really really needed a wheelchair. So maybe thats about it, me my EDS and my guilt.
  • @nicokelly6453
    Thanks for the tour, it was really cool, and I liked the things you said at the beginning. Also, I loved Luna poking in all the time, she's adorable!
  • @skyy_yoga
    So lovely to see behind the scenes and how you do what you do 😍💕 ps blue skies looks amazing on you ❤️❤️
  • Great video Stela! It was interesting to see how you navigate through your day. It was lovely seeing Luna too! Xx
  • For sure! I was embarrassed that I lost weight and was crawling. I now use a rollator. I’m looking to get crutches
  • Love the video. Your positivity is inspiring. Sending you my love and big hugs 🤗
  • @mollyram2997
    Love the insight in to mobile aids! Your house is gorgeous.. can't get over Luna<3/ I'm a cat person too.. I have FIVE cats hahah.(I took in a little baby stray, somehow she was pregnant so that's how that happened). They are all grown, each different colors. We are one big happy family.:) Great video as per usual! I'd love to hear how you got in to yoga!
  • @PrettyEyesz
    After 2022 my life changed drastically at age 34 after having a life altering stroke, with in the next year 2023 I was diagnosed with a autoimmune disease very similar to Lupus called Primary Sjogren's Syndrome which causes multiple different symptoms. The worst symptoms I deal with frequently are my chronic joint pain all over in my fingers, shoulders, elbows, knees, and ankles. The pain in my back knees and ankles make it hard to walk sometimes. I literally can wake up with pain in my knees and be limping throughout the day because of the pain. I also deal with chronic migraines and extreme fatigue & body weakness, plus dizzy/ fainting spells frequently too. Now since learning about the term "ambulatory mobility aids" I'm doing research in thinking about getting one for myself. Because I notice when I stand a long time or walk a little of a distance, I start to feel dizzy feel shortness of breath, or get pain in my back and knees. I feel like if I had like a walker with a seat or a electric scooter I would feel more safe, because if I start to feel dizzy or extreme pain in my knees, I would have that added protection. It wouldn't be something I need everyday but just sometimes.
  • @SolvedRubixQbe
    It’s nice to see someone with similar disabilities as me
  • @amyberube6814
    Awe this was my favourite video so far ! It actually made me miss you ALOT ! Seeing your home brought back so Many memories!! I’m happy to have seen Charlotte and Mary Kate and Ashley 😂 and Luna modeling the bath chair killed hahaha 🤣 love you babe !! Looking forward to your next video 😍 🧞‍♀️🧞🧞‍♂️