The Butterfly Rebel

About The Butterfly Rebel

Hello beautiful Butterfly people, welcome to my channel. My name is Cari-Ann and I have been living with Junctoinal EB (Epidermolysis Bullosa) for 42 years now. It's a rare genetic condition that causes blistering of the skin. EB is present from birth and is very painful, with no known cure!

I have always approached my treatment and life in my own unique way, taking the road less travelled. I truly believe that the original choices of my very brave Mom and later me, have made a huge difference in the quality and vibrancy of my life. It is my hope that there are others out there who also seek a natural holistic approach and a better quality of life!

There is so much suffering and tragedy surrounding this disease and I wish to bring valuable advice, from my personal experience, on every aspect - from physical, mental and spiritual. Bringing some lightness to your being and hopefully even some laughter!

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Email address

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