The After

Published 2024-03-25
IN THIS VIDEO:


Welcome to my channel...

We lost our precious Daniel, age 26, on January 12, 2024. I am now in the "after" part. I'm uploading this on March 25, 2024. The days between now and then, have been really awful. Somehow though, I believe Daniel is reminding me to feel the light. To seek purpose. To share that with others. I'm also connecting with so many other parents, siblings, friends family members etc who have gone through this traumatic loss. There is so much comfort in that.

I am still trying to figure out where to go with my channel, and for now, II will just be spontaneous about it. One moment at a time. It's a good creative outlet that way.

Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs. And now, how we are coping with living without him.

Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!

The Adapted Life Podcast, by Julie Hasselberger. listen !
theadaptedlife.buzzsprout.com/

Music licensed by Epidemic sound and Premium Beat

filmed with Canon G7X Mark II

#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild #grief #lossofchild #griefpodcast #suddenloss #trauma #deathofson

#deathofchild
#mourning #sad

All Comments (21)
  • Daniel was blessed beyond words he well always have a place in my heart I still remember the poem I wrote for you all his beauty his smile touched so many when the sunshine’s he warms you like a hug every graceful butterfly well remind you of all the art and beauty he created a lovely service thanks for sharing it with us
  • I miss seeing Daniel in your videos even though it's been 2 months already... i am crying for you
  • Julie my heart is broken!! I truly believe that Daniel has never left you!! He’s with you ALWAYS!!!❤❤
  • @kristypaul8067
    My heart breaks for you and your family Daniel will always be your guardian angel ❤
  • @nicolethorin2713
    Julie, Thank you for sharing Daniel with us all. He found joy in the simple things in life and was always happy and smiling. He is greatly missed. Thinking of you all daily.
  • @gourmet2276
    So sorry for your loss .love and thoughts with you and your family at this time.
  • I am so very sorry for your loss your son is in a better place now
  • @Netehope123
    I am so sorry to hear of Daniel’s passing. I have followed you for a number of years but recently your channel reappeared and I saw that he had passed. He was such a big part of your life and your family. May God’s strength be with you, John, Sarah and Thomas.✝️🙏🏻🤎
  • @lisagibbons763
    I’m so sorry for your loss Daniel will be missed all around the world who watches your you Tube ❤
  • @kathylester5646
    Thank you for sharing. Daniel was a beautiful soul! I loved your description of the boat. That describes those early days so well. I hope you can find some peace in each day as you travel your new path. This road is not easy and will have steep mountains and deep rivers, but you will make it through.
  • @ddinottia39
    Im so sorry for your loss of your special Daniel!! Prayers to you, husband and his siblings. ❤ 🙏🫂
  • @EmmaStiffe
    I am so sorry for your Daniel will be in your heart
  • @jazzjournal
    Julie I am so sorry to see that Daniel has passed away. I have been watching your videos for many years, and what a blessing he was to your family🙏❤️
  • @ks0969
    My family and I send our deepest condolences. We had met briefly at Maria Fareri, yrs. Ago. We send our love and prayers for you guys