NETWise Episode 1: What You Need to Know About NETs.

NETRF
NETRF
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2020-02-19に共有
In this episode of NETRF’s NETWise podcast, we define and explain how neuroendocrine cells become neuroendocrine tumors (NETs). We take a deep dive into understanding prognosis, defining the stage and grade of NETs and the “upside-down” nature of NET primaries and metastases. We discuss the signs and symptoms of NETs and the frustration of misdiagnosis. NET experts address the ongoing confusion between the terms NETs and carcinoid. Throughout the episode, we hear from NET patients as they tell their stories of diagnosis, misdiagnosis, and treatment.

To download a copy of the transcript for this episode:
netrf.org/podcast/what-you-need-to-know-about-nets…

To listen to other NETWise episodes:
netrf.org/podcast/

NETWise is a podcast featuring neuroendocrine cancer experts and patients, produced by the Neuroendocrine Tumor Research Foundation (NETRF) in Boston, MA, USA.
コメント (11)
  • @Trial212
    Thank you for this great video!! I was diagnosed with small bowel NET in July of 2020. I have lymph node involvement in the mesentery and a small mesenteric tumor. (localized mets). A PET scan done in October 2020 after I had healed from the small bowel resection showed no additional metastasis. Praise God!! A follow up CT of the abdomen and pelvis done in July 2021 (my one year anniversary) also showed no additional metastatic spread!! Again Praise God!! Thank you for such a great informative video!!! God Bless!!
  • @michelledickie1312
    I was just diagnosed 3 days ago with a NET to my Ileum. Waiting now to be seen by a physician to discuss my treatment options. This was a very informative video. Thank you
  • @myenchantedlife5262
    The main problem with diagnosis is doctors are trained to think the patient is lying if things do not add up for them. Doctors should be health detectives. I am a PNet, misdiagnosed for over 20 years. My Neuroendocrine Cancer was not found till after it atrophied my pancreas. It is a crime what NET patients have to go through to get good care.
  • @cindylevans6162
    My husband had a net tumor recently removed from his bladder. Nothing I read about this made sense and no one seemed able to tell us more than it was an aggressive type. Thankfully I found this series. It explains simply but thourghly and answered many of our questions/that can be.
  • @ursuladuplessis4371
    This information on NET is so interesting and I understand my problems better. Thank you. I got tumors in my liver and still been treated with Sandostatin successfully for 3 years now . I don't for how long I'm going to get the injection '
  • @grantwalker1852
    Thank you for this series. I am finding it very helpful and informative.
  • @paulposey1162
    By chance I was DX in October 2022, mine can’t be operated on and hot flash are my worst side effect, I get a special injection to help this but is being changed to every three weeks. Another is lower extremity weakness. Godbless caregivers and patients.
  • @Mel-se7vt
    Some doctors do not listen to patient's symptoms. They always say "We go by the book. Do not believe things you read on the internet" (I explained I have the same symptom as described by CDC website) As it turned out, the hospital misdiagnosed me. 3 doctors! Some drs always think they know more about the patient's body than the patient himself/herself.